June 3rd
Hello to all.
As most of you are aware we had recently come to a point where Shannon and I began researching treatment options for Claire. She did not tolerate the 1st round of maintenance chemo well. We spoke with UCSF, St. Jude, and our team at Sutter. There were different opinions and at a point we were leaning toward a 2nd brain surgery. In the midst of this research, Claire got an infection and was hospitalized for 9 days. She has returned home and is feeling and looking better. She will need some recovery time at home before beginning any treatment. At this time we are most likely going to attempt an adjusted maintenance chemo protocol. Claire underwent a brain/spinal MRI on Friday and we will have prelimenary results on Monday. The MRI will determine whether we have the option to continue chemo. If any growth or new disease is visible the options become limited.
Keep Claire in your thoughts and prayers. We hope for positive news regarding her scans. Claire is an amazing spirit and has beat all odds to date. WE BELIEVE she will continue beating this disease.
Thanks
posted by Miller Family @ 9:56 PM
16 Comments:
Positive thoughts are all we have in our hearts for Claire and her amazing family! We love you all so much. Thank you Chris for the update.
XOXO
Rick,Kristen,Lauren & Caroline
Sorry to hear about your infection Claire but happy to hear you are doing better. We will keep our fingers crossed so you can keep up with the medicine and fight that ugly cancer. Thinking about all of you every single day and sending positive thoughts each time. Hang in there!
Love, The Aalgaards
Claire,
It was so great to see you at school on Friday. I had so much fun playing with you.Thank you for coming and making my day!!!!!!!
Love,
Chloe
We know you can....we know you can. Love, Ken and Nancy
WE KNOW SHE WILL BEAT THIS, Thank you for your update, sorry to hear infection, but glad to hear she is feeling better, YAYYYYY CLAIRE!
I ammmmm sooo proud of you!!!!!!
you Nona
The Warlicks continue their prayers for Claire and appreciate the updates whenever possible. Keep your amazing attitudes because all of you inspire all of us. Claire is amazing and we pray for positive results on Monday. Hugs to all of you...Patty and Family
I continue to have Claire in my thoughts and prayers on a daily basis. I am praying like crazy that her MRI results will be positive, and that Claire will continue to beat the odds.
Jacquelyn
ps I have tried to post for the past couple of weeks and have had trouble...just want you to know that I'm always thinking about her, and pray that she is doing well.
We know you can Claire! Keep strong!
Love, Lindi, em and Dorian
XXXXXOOOOOOOOOO
Shannon and Claire,
It was so great to see you at school on Wed. Claire's fiesty spirit continues. Thank you for sharing her with us. All our love and prayers, Everyone at CPP especially Mrs. D.
Claire you can beat this thing! So many people love you so much and are pulling for you. We think of you often and pray for positive MRI results. We love you claire and family!
Amy,Norm, Olivia, Ava and Luke Nhaisi
I did the relay for life on Sat/Sun and wore my SuperClaire braclet... wanted to let you know I was thinking of Claire the whole time I walked... She is in my thoughts every day and I know things will come out ok... Your whole family is in my thoughts and prayers! Stay strong Miller Family!!
My continued prayers and positive and good thoughts to all. You can Claire! Hugs to all of the Miller family.
Peggie
We think about you and pray for you every single day little Claire. Keep up your strength!! We're sending good thoughts for great test results!!
Love The Kiniris Family
We think about you and pray for you daily. You're a strong family with an amazing little girl who is a fighter. You can do this Claire. We KNOW you can. Go Claire.
Lots of love,
The McLaughlins
Your family is an amazing ispiration and I pray for you guys all the time! Keep up the great work Claire. I KNOW YOU CAN!
Love you all,
Aylin
Claire,
Words cannot express how wonderful it was to see you at school on the 30th of May. I was so thrilled and so happy to see you there having fun and eating pizza with the other children. My prayers are that you will be able to do that daily and really soon. It was a special day made even more special because you were there. Love you my very special Claire, Mrs. Main
And Shannon it was so wonderful to see you also.
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