March 15, 2007
Another quick update for all. Claire is doing well and enjoying life at home. We are about 4 weeks out from her last treatment and again are facing the unknown. As mentioned earlier, we were expecting a 2nd surgery. But as seems to often be the case, we were wrong. Claire's neurosurgeon presented his opinion to Shannon and I on Wednesday. In brief, the risks are greater than the reward. Next week we will meet with the Oncology team to determine the next treatment. It will most likely be a protocol of maintenance chemotherapy for a period of 6-12 months. Claire has beaten the odds so far and we see no reason why her "winning streak" can't continue. Each day, month, year, that we can avoid radiation therapy will improve the cognitive outcome for her. It is our hope that she will overcome this disease without having to undergo radiation therapy. If anyone can be that minority statistic, it will be Claire.
Thanks to all again. Hard to believe 8 months have passed since this began. We couldnt have gotten this far without all the support, prayer, and positive thoughts. Please continue as it has made a difference.
posted by Miller Family @ 9:50 PM
12 Comments:
Hi Miller Family,
Thanks for the update, we think of Claire and your family often and are inspired by you all. Claire we know you can and will beat this. Love from Salem, Pence-Walters Family
We believe in you Claire and know that nothing is going to stop you from getting better. My pink bracelet reminds me each day of you and your family and we send you our love and prayers.
Ken and Nancy Bowles
Thank you for the update. We continue to pray for Claire and will keep her in our thoughts for the next several months!!!
So happy to hear the good updates. Claire is truly an amazing little girl. We believe in her and know she can...
We are always thinking of you and sending you our prayers and love.
Heidi and family
It's wonderful news that little miss Claire is home! As always, we are thinking of her and your entire family each and every moment!
With all our LOVE,
The Brushes
Eight months... I was thinking about that the other day. But Claire really does appear to be doing well, in her own way, and the longer she can keep up her winning streak the better she will be for it - not only in terms of just beating the villain down, but more effective protocols get established all the time. We can only assume that Claire's valiant fight means good things for both her and her family. Every day is so precious and I believe Claire will be here for a long time with that very unique personality shining through. What a testament to the human spirit!
Love to the whole family - and especially that little Reecey.
Lindi, Emilie and Dorian XXX00000
Love and hugs to your wonderful family! I heard on the news there is scientific evidence that prayers have healing value. We will continue to pray without ceasing for all of you. Enjoy the stay at home and know that you're not alone in your fight... we're all behind you. Love from everyone at CPP. Mrs. D.
Thanks for the update. We are happy Claire is home and doing well. We pray and think about your family all the time. Maggie and Olivia are looking forward to playing with you, Claire, this summer when we move back to Sacramento. Stay strong!
Love,
Kim, Mike, Maggie and Olivia Schlieman
Hi! I am a member of Audrey's Umbrella: The Healing Exchange Mail Program, which is a cheer-mail program that was designed to brighten the lives of people who are living with brain tumors. I would like to invite Claire to join our list of Featured Friends that we send mail to. If you think this is something she might enjoy, please email me at zacheric02@msn.com. I'd be happy to give you more information about our program. We'd love to send some smiles her way! :o)
Seeing Claire last week was so uplifting. I loved chasing her around the office and playing hide-go-seek. I look at her beautiful smile and clear joy of life that I have no doubt she can fight this ugly, horrible cancer. I know she can and I know she will!!! She can come by my office to play ANYTIME!!
Love, Melanie and Andrew
Claire is one in a million - if anyone can beat the odds it is Claire. We will keep praying for you all for healing and comfort. Just know that you are loved and always in our thoughts and prayers.
Love from Oregon,
The McLaughlins
So happy to hear that Claire is at home surrounded by her loved ones! There is no doubt in my mind that she will beat the odds, she is a rare character that will overcome any and all that is put in front of her! She is simply an inspiration and all my love and prayers goes to all of you!
<3
Aylin
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