Claire Denise Miller

The Miller family invites you to share your love and support for Claire, and become a part of her recovery. Updates will be posted regularly with Claire's progress. Thank you for all your thoughts and prayers. Love,
Chris, Shannon, Ryan, Claire and Reese

Tuesday, February 13, 2007

















Tuesday, February 13, 2007
I am so sorry for my absence.....January was full of many beautiful moments and experiences and I want to share all of them with you, but I just received a call and Claire is in pain at the hospital and I need to run back. This last Saturday, February 10th, Claire started with a low grade fever during the day at home but required admission to Sutter Memorial late Saturday night. Within three hours after her admission, her frail and weak body was fighting to survive a very serious bacterial infection. Her fever was so high it was unmeasurable and her abililty to be responsive and breathe independently was jeoparized so close to a full body coma state its hard to relive again. The bad news is her infection is e-coli, one of the deadiest and fastest growing bacteria to a zero white count body there is, the good news if you are able to catch it in time, it is very responsive to anti-bacterial medications. Claire beat the infection by about 2 hours the physicians estimate, meaning if we had not aggressively treated her infection within 2 more hours we would have lost her. I recall crying and yelling at her when she was drifting away from me during the horrific hour late Saturday night - I could not believe she has beat all the odds and medical prognosis' with this evil tumor so far and now could leave us because of a microscopic bacteria every healthy child and person controlls naturally - " I REFUSE", I repeated over and over to her. We all have e-coli and other bad bacteria in our bodies naturally but we can fight it and never know it presence. After 6 rounds of high dose - almost lethal chemotherapy her intestinal lining and normal body functions are so compromised a little bit of e-coli escaping into her blood or other organs is fatal in less than 4 hours. But she did it again and only in Claire style too. There were about 4 nurses and other allied health professionals treating her during this crisis and after a long struggle, Claire suddenly opened her eyes and was able to track us and yelled with such strength and conviction..."LEAVE ME ALONE!". One of the nurses responded asking her which one and Claire looked at them all and thought for a moment..."ALL OF YOU!". The staff and I broke out into more tears but this time with screams of laughter as we all knew - Claire Won!!!! She did it again. She is fever free since Monday, although with the life saving medications comes painful bowel activity, stress and discomfort and the only relief is being held my your mom or dad when you feel so lousy. I promise I will back track and share all the fun stories and Claire moments that accompany the fabulous pictures above taken during an incredible January. Thank you for your unwavering support and love - we feel you!!

27 Comments:

Anonymous Anonymous said...

Claire...You are the 8th wonder of the world! I'm trying not to cry reading your Mom's last entry but it's hard. I feel all your emotions, Shannon and Chris, when I read your updates and this last one left me speechless. Is there no rest for any of you? I'm sending all our love to all the family and most especially to our little Claire. She is quite the inspiration to us all. May I never utter another complaint in my lifetime!!! We love you all...Patty and the rest of the Warlicks

4:20 PM  
Anonymous Anonymous said...

Thank you soooo much Shannon for taking the time to update how Claire is doing.....I'm in tears everytime I read something that you write....you and Chris are soooo strong and Claire too. I know she can and will beat all of this....and I am sooo happy to hear the good news. Claire is very independent and when you wrote " all of you leave me alone" I can only imagine how cute she looked! I love the new pictures, she is glowing! Ryan and Reese look amazing too. They are sooo big! Thank you for your continous updates. I look forward to reading about Claire everyday!
I love you guys!
And Claire, We are all rooting for you! You have showed everyone you are a fighter and you can do it!
Love,
Your Nona

4:25 PM  
Anonymous Anonymous said...

Millers-
What can I say other than, if there is anyone that is going to get through something horrible like this it would be Claire! She has the best family and friends that anyone can ask for, we are all routing for you Claire! It hurts my heart to think about it and gives me the chills everytime I read the site but I AM SOOOOOO HAPPY to hear that Claire put up another great fight! Thanks for the updates! Keep on doing what your doing CLAIRE!

LOVE ALWAYS,
Aylin <3

4:38 PM  
Anonymous Anonymous said...

Keep up the fight Claire!!! We know you can!!!!!

5:25 PM  
Anonymous Anonymous said...

It's so hard to find the right words and I suppose there is no perfect thing to say. We can only say how we feel and it comes from the very bottom of our hearts. There is truly no other family that touches us the same way as your beautiful family does. We pray for you all everyday that you will never let go of your incredible strength. We love you all so much!
-The Brush Family

7:20 PM  
Anonymous Anonymous said...

Dear Miller Family,
Just wanted to let you know you are in our prayers. I learned of Claire's condition a few days ago from Denise and was saddened that you should have to go through such an ordeal. Claire is so lucky to have such a loving family! That love gives her such strength and what she needs to keep fighting! She is such an inspiration for such a young thing.
We love you all,
Pence-Walters Family

9:43 PM  
Blogger Emster said...

Claire, the pictures of you are so beautiful and it is so unfair that you are hit with one "crappy" thing after another. You truly are an angel from heaven and we just know your smile, determination, and all this love will pull you through. God bless you. We could all learn from your unwavering strength....

Lindi, Em and Dorian

9:49 PM  
Anonymous Anonymous said...

Dear Shannon,
Thank you so much for your up date about Claire. I check everyday to hear news of her, its a part of my daily routine. She is such an inspiration, for someone so little fighting so hard. Keep up the hard work and determination Claire and family, I know Claire can do it. Throughout all those days in gymnastics class with me over the years I have seen how stubborn she is and know that she is if anything very persistent. She can fight through this ugly disease. Can't wait to hear all about those happy photos, love you Claire, hang in there strong girl.
Love, Ms. Shasta

10:11 PM  
Anonymous Anonymous said...

Hi Miller family,

10:55 PM  
Anonymous Anonymous said...

Hi Miller family,
It is so wonderful to hear of your joys and strength! Thank you for sharing your most precious memories as you make them and the difficult trials as you go through them. It is beyond inspirational...it allows all of us to focus our prayers for you and to gain perspective in our own lives.Thank you and God Bless. Love from all of us at CPP., Mrs.D.

11:02 PM  
Blogger Robin said...

Happy Valentine's Day Claire! You are quite the little girl.
Robin Brunet, Bradford Ontario Canada

6:05 AM  
Anonymous Anonymous said...

I so enjoy reading of Claire's fighting spirit and determination! She is one tough, wonderful little gal. We keep her and her loving family in our prayers always. "Leave Clair alone" you ugly bacteria.

Love, Nancy

7:40 AM  
Anonymous Anonymous said...

Claire,
Keep fighting, you sure are a trooper! We love your pictures and can't wait to hear about all your busy January. We hope your stomach feels better quickly, so you can enjoy some Valentine treats. Happy pink and red day!
The Wiesenfarths

8:05 AM  
Anonymous Anonymous said...

Claire, you are such an inspiration to all who follow your progress. They say you have to climb the mountain in order to see the view. Lord knows how hard you have been climbing, the view will be that much sweeter when you get there. You keep fighting this and always know our prayers are with you. You are everyones Valentine sweetie. Andy Borovansky

8:37 AM  
Blogger Tracy said...

I just wanted to tell you that my eyes lit up this morning when I saw the great pictures of Claire. I love the Target one for sure!

Now as I sit here wiping away my tears, I am just speechless (typeless). Claire's little body has been through so much over the past months, yet her character and pride seem to pull everyone along. She truly is an amazing little girl with an amazing family. You will get through this!

All of our love,
The Brumms

9:04 AM  
Anonymous Anonymous said...

Happy Valentine's Day Millers! What a rollercoaster ride you have been on.... I am so thankful for anitbiotics. I love your blogs Shannon, even though I cry my heart out every time. I think so highly of you and am constantly thinking of you and Chris and the kids. Always thinking positive thoughts. Claire has the power. And I LOVE the pictures. You made my day.
Love to you!
The Aalgaards

9:53 AM  
Anonymous Anonymous said...

Stay strong Claire! You are a fighter!
Pete Harvey
Savannah's Dad

10:00 AM  
Anonymous Anonymous said...

Shannon:

Thank you for writing. We all look forward to the updates on Claire and wonder each and every day how you all are holding up. The pictures are wonderful and tell it all...you can see the love that your sweet family shares. You will get through this! Last weekend was yet another example of Claire's strength and determination. You are an incredible mother - I am sure it is so hard for you and Chris to stay strong through all of this. We will continue our prayers and the positive thoughts. We know she can!!!!!

All our love,
The Monahans

11:29 AM  
Anonymous Anonymous said...

Happy Valentine's Day to everyones favorite little girl! Claire, you are such a fighter and we love you for your courage and determination. I am looking forward to the news of January your wonderful mommy will share. Love, prayers and comfort to you all. Barbara

11:34 AM  
Anonymous Anonymous said...

Happy Valentines Day Claire! Praying for you! :)

1:32 PM  
Anonymous Anonymous said...

Hugs and special wishes to one very special Valentine. Stay strong, sweet Claire. Don't ever give up Miller's.

1:48 PM  
Anonymous Anonymous said...

Claire-
Wishing you Luck from Santa Barbara. May music help your soul and spirit.

KL

8:48 PM  
Anonymous Anonymous said...

Dear Miller family,

We are once again stunned at all you have had to face and with such love, grace, and strength. We pray for your family every day and know that Claire, the fighter, can beat this ugly disease and every nastey bacteria that tries to get a hold of her. You all are our heroes. We know you can, Claire, we know you can.

All of our love, prayers, & thoughts are with you,

The McLaughlins

11:36 AM  
Anonymous Anonymous said...

you are my "HERO"...Claire you truly are one tough cookie...and i love you and hold you close to my heart at all times...

11:39 AM  
Anonymous Anonymous said...

Claire and family,

Praise God for all that he has brought you through. You are always in my prayers and I am awed at what spirit you have. We were so overjoyed by your visit to the preschool, please know that you are loved and missed. Keep the faith, God can do awesome and miraculous things. Love, Mrs. Main

4:32 PM  
Anonymous Anonymous said...

We are holding your bracelet very close. Your Grammy shared it with us for Valentine's Day. We keep you close in our hearts and wish we could take your pain away and make you healthy again. Our love and prayers are with you. Ron & Sue in Salem

5:20 PM  
Blogger Unknown said...

Never underestimate the strength of a child as they are so much more resiliant (physically and mentally) than us adults! I am sending some positive energy your way and hoping that after this battle is won you can be thankful how much loved was exchanged within your family and amost friends.
Stay Strong Claire and know that you are LOVED!

Melanie Smith
Early Childhood Educator
(Friend of Scott and Carol Maloy)

5:19 PM  

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