February 1, 2007
Our apologies again for the lack of news but again our lives have been in a bit of turmoil. We had medical appointments on the morning of Friday, January 26th, and a decision was made that Claire would complete her High Dose Chemo/Stem Cell Rescue protocol at UCSF. She was scheduled to be admitted on Saturday morning. That afternoon Claire began not feeling well and eventually an uncontrollable fever sent her to Sutter Memorial Hospital. Just our Luck! Claire had been doing amazingly well and her extended stay at home with us was pure joy. Her blood cultures would show bacterial growth (infection) and we faced a 14 day hospital stay. She again was resilient and with the help of potent anti-biotic treatment departed this morning for UCSF to undergo the 3rd and final round of high dose/stem cell rescue treatment. We will take each day one at a time and upon her recovery from this round she will likely undergo another brain surgery to biopsy the questionable enhancing mass. There are questions to what we are seeing on the MRI's and our medical team has agreed that upon reviewing the next set of images (post 3rd treatment), assuming there is no change or growth, we will go forward with a surgery to biopsy some of the questionable tissue. I know Shannon is aching to get on and write and I hope she will be able to update everyone upon Claire's return from UCSF. Keep the prayer and positive thoughts coming. I know the love and support is helping. We have come so far and I believe we are going to beat this disease.
Thanks so much for following Claire and supporting our family. No words can tell you how much it means to us.
posted by Miller Family @ 8:38 PM
20 Comments:
Dearest Miller Family,
Thank you for the update, we have been eagerly awaiting some news since we heard Claire was in the Hospital with an infection. The third time is going to be the charm. We also believe in Claire and her ability to beat this disease.All our thoughts and prayers are with you each and every day. Love, The Franz Family
We continue to pray every day! Continue to stay positive!! We are!
Thinking of and praying for you every day!
Pet Harvey
Savannah's Dad
www.caringbridge.org/fl/savannah
Continued thoughts and prayers for Claire.
Robin Brunet
Bradford, Ontario Canada
Debbie and I are wearing our braclet's everyday thinking and praying for Claire and your family. Keep on fighting little Claire, you are so incredibly strong
Chris, thank you for the update and taking the time to touch our hearts once again. You are all amazing! We continue to send our thoughts, prayers and love your way.
-The Brush Family
We all know that Claire can beat this - you are all doing an amazing job! We are thinking about you often and our prayers are with you all!
Love, Steve, Patty, Jack and William
Our love and prayers continue to be sent your way. Claire is such an amazingly strong little girl, and you guys are an amazingly strong family. Keep up the fight, you are going to beat this disease!
All our love,
Billy, Tracy, Kelsey and Wyatt
oUR LOVE GOES OUT TO ALL OF YOU! wE CONTINUE PRAYERS FOR cLAIRE'S RECOVERY AND EVENTUAL PEACE FOR ALL OF YOU. wITH LOVE, pATTY
I'm feeling good news is coming.....
Love, Em, Dorian and Lindi XXX000
We believe in you Claire! Our thoughts and prayers are with you each day and we know you can beat this. Just know that you are surrounded by love...the most powerful force in the universe!
xoxoRas and the Bean Boys
I'm soooo happy and relieved to hear that Claire's MRI showed no signs of growth. I'm sorry she had to endure another 14 day hospital visit. But Claire is sooooo strong she will overcome any obstacle in her path. Keep fighting Claire, we all know you can do it! One day u will look back and say "I knew I can, I knew I can".
Forever in my thoughts and prayers!
I LOVE U CLAIRE!
Dear Miller Family:
Thank you so much for the update. I am sure it is difficult to find time to write, but please know how much we all appreciate the information on sweet Claire.
We will all continue our daily prayers for Claire. We also believe that you will beat this...stay strong and positive. Good things are coming!!!
Our thoughts and prayers are with you.
All our love,
The Monahan Family
Chris-
Thank you so much for the update. We continued to be inspired by claire's strength. We have complete faith in her ability to beat this disease. We hope the third round of treatment goes well. Looking forward to our next playdate.
Love,
The Trask Family
GO CLAIRE, WE KNOW YOU CAN BEAT THIS. KEEP FIGHTING AND BEING THE BEST TROUPER IN THE WORLD. WE ARE PRAYING FOR ALL OF YOU UP HERE IN OREGON WITH ALL OF OUR MIGHT. WE WISH THAT WE WERE CLOSER SO THAT WE COULD GIVE YOU SUPPORT. MANY PEOPLE ARE WITH YOU EVERY STEP OF THE WAY. KEEP THOSE POSITIVE ATTITUDES.
WE LOVE YOU,
THE MCLAUGHLIN FAMILY
Dear Miller family,
Praise God for the strength He continues to impart to Claire and all of you as you endure further treatments. In and of yourselves, the challenges you all face would seem insurmountable. It is inspiring to witness the work God is doing in all of you to courageously fight against the disease that inhabits sweet precious Claire. With God anything is possible, without Him, we can do nothing. All of us at CPP continue to lift Claire and your entire family up in prayers. We pray for your encouragement in God's miracles and that you lean upon His gift of strength and love that He graciously has bestowed to you all.
You are in our hearts.
Love,
Mrs. McCarthy and the CPP Staff
Dear Miller Family,
Hi from Oregon! My mom talked to your mom/grandma Denise today and I was amazed to hear what your family has been going through. Claire sounds like such a magical, wonderful person with wonderful loving people all around her! I pray for all the best with this third treatment. I always thought you and your sisters were the coolest, most loving people on the block. It seems like time has only made you more wonderful as a mother. Best of luck,
Amber Lee Pence
Claire and the Miller Family...
My hugs, prayers and love continue your way. Your strength is amazing and if love and prayers can work a miracle, it will happen for you. Stay strong and know you are always in my heart.
Peggie
Dear Miller family, thank you again for the updates! Our family talks of Claire often and we keep her in our prayers and hearts. Keep fighting!
Love the Nhaisi Family
Las Vegas
Hi Millers,
So happy to hear there is no growth and that Claire is still being the fighter that she is. Your family is always in my prayers and I have no doubt that Claire can beat this battle! Keep uo the good work Claire!
Much Love,
Aylin
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