Claire was "sprung" from the hospital. She responded well to treatment and the hope is that the infection does not return. If it does that suggest the infection is somewhere in her shunt line. They did " tap" the line and found the samples clear but the infection could be anywhere along the pathway so the result is not necessarily a firm clean bill of health.
She is doing very well and accompanied me to work on Tuesday for a few hours. Very special.
We now will await the August 12th MRI with hope of continued success.
Thanks.
20 Comments:
We'll wait for the next update telling us that Claire will be supervising things at work for you :)
We are keeping our fingers crossed and saying even more prayers for good news on August 12th.
We love you all so much,
Prisco & family
Is is impossible to keep that little gal down!! We so believe in her and her ability to fight and get well.
Love, Ken and Nancy
Way to go! Your family is in our prayers and we're expecting a fantastic Aug 12th MRI...
Love, Lindy Emilie and Dorian
XXXXXX00000
"DEAR EDITOR: I am 8 years old.
"Some of my little friends say there is no Santa Claus.
"Papa says, 'If you see it in THE SUN it's so.'
"Please tell me the truth; is there a Santa Claus?
"VIRGINIA O'HANLON.
"115 WEST NINETY-FIFTH STREET."
VIRGINIA, your little friends are wrong. They have been affected by the skepticism of a skeptical age. They do not believe except [what] they see. They think that nothing can be which is not comprehensible by their little minds. All minds, Virginia, whether they be men's or children's, are little. In this great universe of ours man is a mere insect, an ant, in his intellect, as compared with the boundless world about him, as measured by the intelligence capable of grasping the whole of truth and knowledge.
Yes, VIRGINIA, there is a Santa Claus. He exists as certainly as love and generosity and devotion exist, and you know that they abound and give to your life its highest beauty and joy. Alas! how dreary would be the world if there were no Santa Claus. It would be as dreary as if there were no VIRGINIAS. There would be no childlike faith then, no poetry, no romance to make tolerable this existence. We should have no enjoyment, except in sense and sight. The eternal light with which childhood fills the world would be extinguished.
Not believe in Santa Claus! You might as well not believe in fairies! You might get your papa to hire men to watch in all the chimneys on Christmas Eve to catch Santa Claus, but even if they did not see Santa Claus coming down, what would that prove? Nobody sees Santa Claus, but that is no sign that there is no Santa Claus. The most real things in the world are those that neither children nor men can see. Did you ever see fairies dancing on the lawn? Of course not, but that's no proof that they are not there. Nobody can conceive or imagine all the wonders there are unseen and unseeable in the world.
You may tear apart the baby's rattle and see what makes the noise inside, but there is a veil covering the unseen world which not the strongest man, nor even the united strength of all the strongest men that ever lived, could tear apart. Only faith, fancy, poetry, love, romance, can push aside that curtain and view and picture the supernal beauty and glory beyond. Is it all real? Ah, VIRGINIA, in all this world there is nothing else real and abiding.
No Santa Claus! Thank God! he lives, and he lives forever. A thousand years from now, Virginia, nay, ten times ten thousand years from now, he will continue to make glad the heart of childhood.
I love this thought. It is what we are missing today. Claire Miller has shown a "grown" man windows he's lost. I believe this is a story that few can tell. Not you...Nor you.
Thanks Claire!!
Na-Nu
August 12th will be in my prayers for good news! Keep it up Claire you are doing grrrrreat!
Aylin
She does it again....yayyyyy for Claire....nothing will keep this lil one down!
Praying for great results on the 12th.
Love Nona
Keep hanging in there Claire! YOU CAN DO IT!!
Hugs and continued prayers!
Peggie
Hi Miller family,
Glad to hear Claire is "free". Always praying, hoping and wishing for all of you.Love, Mrs. D.
Good Luck on the 12th! We are praying for you and awaiting the good news!
We love you all.
The Nhaisi Family
Hi Millers,
We are thinking of you daily and so glad to read that Claire is out of that hospital. We will be sending prayers for great news on the 12th! Thinking of you!
The Wiesenfarth Family
Dear Sweet Claire,
I've missed you these last two weeks at gym. It hurts my heart to know you have been in again. Although you are so strong and determined. I'm so glad to hear you are out and feeling better. I will keep you and your family in my prayers on Tuesday August 12th for good news. Lots of hugs to you and your family!!!
love, Ms.Shasta
Hi there- We are the Bouchard family from Virginia and our little girl, Ellie, who is 5 has a supratentorial PNET. She was diagnosed April 23rd of this year and has had 2 surgeries to ressect the tumor. 95% of it was removed. We are currently at St. Jude Children's Research Hospital receiving treatment. Ellie has completed 6 weeks of radiation and starts chemotherapy next week. She is doing very well. I believe Claire has a similar tumor. If you would like to talk, that would be great. Ellie's website is www.caringbridge.org/visit/ellie1
We wish you the best recovery and life for Claire.
-Colleen, Steve, Emma and Ellie
Many cheers for Claire!
Our thoughts will be with you tomorrow for the MRI.
Stay strong!!!
Dear Millers,
A very special prayer that the MRI will show continued shrinkage. I am so happy to hear that you got to take a trip and I pray that it was filled with love, laughter and lots of precious memories. Keep your faith, and God will keep his promises that he is always with you. Waiting for good news. Love you always Claire, Mrs. Main
Keeping only positive thoughts for Claire today!
God Bless You little Claire!! We are thinking of you today and always. Praying for more good news.
Dear Shannon, Claire, & Family:
Just wanted you to know we're thinking of you today. Hope the MRI went well. Keeping you in our prayers....
Dear Miller Family,
As always you are constantly in our thoughts and prayers, especially today as you once again went through the MRI experience. Sending positive and happy thoughts your way. Hope your trip to Oregon was filled with love, fun and happy memories.
Sure do miss Claire's smile that lights up brighter than sunshine!!
Blessings to you all. Much Love, Mrs. McCarthy and CPP Staff
I just wanted to stop by and let you know that I've been thinking about you all day and praying for wonderful MRI results.
Love to all of you,
Lana Michelle
Thinking of you today and always. Love, Mrs. D.
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