Claire Denise Miller

The Miller family invites you to share your love and support for Claire, and become a part of her recovery. Updates will be posted regularly with Claire's progress. Thank you for all your thoughts and prayers. Love,
Chris, Shannon, Ryan, Claire and Reese

Tuesday, May 06, 2008

MRI Results

Claire's MRI was completed on Monday around 5:00 pm. We met this morning with our lead oncologist at Sutter to discuss results. The images provided a good news/bad news scenario. The good news is that there is no dissimination of disease and her spine is clear. We will not have pathology on her spinal fluid until Wednesday. The bad news was that the original enhancing tumor has actually grown. The growth is not substantial but the fact it remains viable tumor after the radiation treatment is of concern. More good news was that becouse the tumor has remained local she still has treatment options. Tommorow she will begin a planned 6 month chemo protocol using 2 new drugs (existing agents, just "new" for Claire). Our oncologist feels that she will tolerate this treatment. Time will tell. She has also been accepted as a candidate for Gamma Knife Surgery. Gamma Board met this morning and agreed that this is a good option for Claire's tumor at this point. We have begun the authorazation process and expect her to undergo this procedure in 2 weeks. Gamma Knife is a very finite use of radiation directed directly on the tumor, avoiding other brain tissue. Not normally used in treating S-PNET's but with Claire's disease remaining a local problem, it is now a realistic option. We will be meeting with the lead radio-oncologist at UCDAVIS today at 3:30 pm to discuss her opinion of the results.

So we continue the fight. We are looking at the positive side of the results, most importantly that Claire has options. We are extremely happy and anxious to meet the Dr.'s to discuss and schedule the Gamma Knife treatment. We will update soon.

13 Comments:

Anonymous Anonymous said...

Nothing, and I mean nothing is going to outdo this little gal!! So glad that she has more options and are praying that the results will be positive!

Love, Ken and Nancy

2:29 PM  
Anonymous Anonymous said...

Thank God there are more options! Maybe this will be the exact combinations of treatments to cure Claire once and for all! We all will keep looking forward to positive news and stand by your side to fight!!

2:39 PM  
Anonymous Anonymous said...

Thanks so much for the update. I am focusing on the positive news and know Claire can do it! Tammi

2:40 PM  
Anonymous Anonymous said...

Options are good! This sounds like it could be what you've all been so hoping for. That little girl is an angel, her strength must amaze you.
My love and thoughts are with you.
Andi

3:54 PM  
Anonymous Anonymous said...

I'm so happy that you have more options! HANG IN THERE! :)

Denise Boroughs-Fitch

4:00 PM  
Anonymous Anonymous said...

Thank you SO much for the update. Options are good! We will continue with our positive thoughts and send them your way :)

With all our love and lots of prayers,
The Brush Family

4:04 PM  
Anonymous Anonymous said...

God bless all of you, and I give great thanks for options!!!

6:12 PM  
Anonymous Anonymous said...

The fact that Claire continues to present with a disease that defies usual progression tendencies is amazing and cause for much jubilation and hope. From what I gather gamma knife has no real side effects so the fact that this can be used is great news. There are always miracles and I believe Claire will be a miracle recipient.

I pray for exceptional news on Wednesday.

Love Lindy Emilie and Dorian
XXX000

6:13 PM  
Anonymous Anonymous said...

The fact that Claire continues to present with a disease that defies usual progression tendencies is amazing and cause for much jubilation and hope. From what I gather gamma knife has no real side effects so the fact that this can be used is great news. There are always miracles and I believe Claire will be a miracle recipient.

I pray for exceptional news on Wednesday.

Love Lindy Emilie and Dorian
XXX000

6:13 PM  
Anonymous Anonymous said...

Yea! Hope is wonderful and options give us hope! Thank you for sharing the news of her progress during this fight. I believe with all my heart that Claire will beat this. Sending Love, Hope and Prayers your way...Love Mrs. D. and everyone at CPP

6:39 PM  
Anonymous Anonymous said...

Go Claire! Yeah Claire! I am very happy with this news. I have read about the Gamma knife procedure. Sounded like a good thing to me! I am feeling very positive and so happy right now. You made my day! Thanks soooooo much for the update!
Love, Heather

6:45 PM  
Anonymous Anonymous said...

Thanks so much for the update!You guys are always in our thoughts and prayers. Your heads must be spinning with all of this information. Thanks for explaining it so well to us. We are so so happy that you have these options. Claire is amazing, and so are you guys! Thinking of you..
The Wiesenfarths

9:04 PM  
Anonymous Anonymous said...

Thank you so much for the update. We have been thinking of you constantly over the past few days. We are thrilled to hear Claire's spine is clear and hopeful that treatment options remain. Claire is amazing. You all are amazing.
Sending a big hug your way.
The Trasks

9:52 PM  

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