May 28th UPDATE
Hi All,
We arrived at Claire's May 12th Gammi Knife consult to be informed that after reviewing Claire's case on Friday, May 9th, the Tumor Board could not recommend Claire for treatment at this time. As I mentioned earlier, there was disagreement as to Claire's ability to tolerate chemo/and or Gamma Knife at the time. Gamma Knife is a form of radiation and the brain can only take so much without suffering severe damage. We examined some other treatment options but accepted the fact we would have to wait, watch, and hope for the best.
As of now, Claire will undergo another detailed MRI on June 19th. The hope will be that at that point, the enhancing area (suggesting tumor) will have had time to absorb the damage of the radiation therapy. We would expect to see measurable shrinkage or stable disease. We then will evaluate our direction but at least know we have the mentioned options of Gamma Knife and possibly a chemo regimen at that time. The other scenario would verify "alive" disease with visible growth. I will not allow myself to consider that so will take no time in discussing it.
Claire has experienced some great times and a few challenges since our last post's. We are trying to focus on the good and try and enjoy what we have been given. It is at times hard to just sit back and enjoy these day's without being reminded of the reality of what we are fighting and facing. But we try.
Thanks for the never ending support, thought, and love.
posted by Miller Family @ 10:13 PM
18 Comments:
Expect no less than the never ending support, thought, and love. Though we may not be present in your everyday life we are here for you in prayer every day. Only thinking positive thoughts today and every day. God Bless!
Each and every morning and night I pray for Claire's positive outcomes. Included in my prayers is the gratitude of your ability to share with us your experience, and keep us all focused on the goodness and love that is Claire.
Thank you for this update. We will continue to send every positive vibe your way as you head toward that next MRI. In the meantime - we hope you enjoy happy and joyful days with lovely Claire and the rest of your beautiful family.
Thoughts and prayers for Claire!! I hope she has only good times!
KEEP IT UP....Claire is a SURVIVOR!
Nona
We, too, will focus on the good!!
With all our love and constant prayers... we're thinking of you ALWAYS!
XOXO,
The Brush Family
I am so sorry it is such a roller coaster - yes then no, then yes, then no - over and over without stop.
I know it will be excrutiating leading up to June 19th - but thus far Claire has exceeded all expectations, so I believe with all my heart that this trend will continue.
Claire may have setbacks as she moves forward, but as long as she is happy and loves life - and she seems to - this is great news and I hope (and know) you are able to cherish each day, even through the misery of all that is happening. There is good, even though, for all of us, it is sometimes almost impossible to see.
We love you all - and give Claire a big HUG.
Love, Lindy, Emilie and Dorian
XXX00000
Dearest Miller Family,
We think good thoughts for you all often - especially when we make "Claire's Chewy Chocolate Chip Cookies" from her first birthday party! It the kid's favorite cookie recipe. :-)
Hugs to you all!
Melanie, Bill, Cooper, Suzanne and Jacob Kanz
Just saw Grammy Denise yesterday and she said she had had some very fun visitors to Oregon. We are continuing to keep you in our thoughts and prayers and wish for the miracle that you truly deserve. We hope only good days are in store for each and every one of you! Love, Ron and Sue
Our love and support are with you twenty-four/seven. We continue to believe in Claire and will think positive thoughts until the MRI on June 19th. Love, The Warlicks
Keep up the great work and the pictures were a big treat...all of your children are beautiful!
Send Claire X's & O's for me!
Aylin
I think of you so often and pray for you constantly. All our best, love Tommy's Family
Claire is was such a wonderful treat for me to be able to come to your school and see you. I came especially to see you and enjoy your loving smile. My prayers always contain a special request for you in them. I am praying espcially hard that your next MRI will be filled with positive results. Have a wonderful summer, and know that my love and prayers are always with you and your family. Love, Mrs. Main
What a treat to see all of you in Oregon. A peak under the hat and there was Claire!
We are reminded that we are all one big family and that goes for our constant prayers for all of you.
Love Hal and Judy
Claire you are an amazing little girl! You are always in our thoughts and prayers. Happy Belated Birthday!
Hi Miller family,
I hope you're enjoying the summer together! Just wanted to let you know my thoughts and prayers are with you this week as you continue on your journey. Love always, Mrs. D.
We will be thinking of you all tomorrow as everyday and wish and pray for only positive, uplifting results from Claire's MRI. Go get 'em Claire!!
Love, Ken and Nancy
Dear Family. Our positive thoughts are with you tomorrow. ....we love you and are still hoping for that miracle. I have a feeling that Claire will show good results on her mri. She does not give in, She will win. Our hugs and prayers for all. Love Forrie and Joy xx0000x0x000
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