Claire seemed to tolerate the initial few weeks of radiation treatment very well. Once we made the decision for full cranio/spinal, her doses were adjusted allowing a transition to the required treatment. As we entered the 3rd week, Claire began to show signs and symptoms of common side effects of RT. Her energy level decreased and she was more than willing to take naps. Her hair really has never had a chance to fully grow back, and in one night completely fell out from the radiated location. Then her appetite began to decrease. It all would soon be followed by the dreaded nausea and vomitting episodes. A tough pill to swallow knowing we had not even entered what will most likely be the most difficult phase of treatment. Claire would eventually require brief hospitalization for IV fluids. It was just our luck that she would need to be admited the night before she was scheduled to attend the "Disney Princess On Ice" event at the Arco Arena with 2 of her old "preschool" buddies. She was so excited when we told her she was invited to this " Mom and Girls" event. When we had to tell her she needed to go back to her "old" hospital and have a slumber party with Mom, you could see the disapointment in her entire body. We reassured her it would be a short stay and in true form she helped pack her bags for the overnight at Sutter. At 11:00 am on the following morning, I was surprised in the shower by a vibrant Claire Miller telling me she was "HOME" and ready for the "SHOW". I had other duties as our Reesy was to attend her first "real" Birthday party. We were very happy Claire was able to attend the event with her "buds" and grateful to the Franz and Lynch families for including her. So this morning began the final 3 weeks of treatment. Claire was excited because her "Little" Grammie Denise was in town for a visit and would accompany her on this morning to her "new" hospital (UCD). Claire can still smile at such things regardless of waking at 6am to report to treatment.
I am unsure of what is ahead. Stopped trying to figure that out long ago. I will hope for continued strength and courage. I will believe miracles happen.
posted by Miller Family @ 10:48 PM
27 Comments:
Yayyyyy for Claire Bear...I am so happy and excited that she got to attend the show with her buds...that sounds fantastic! I know how excited Claire gets for special treats like that! I can also imagine Claire surprising you the day of and her eagerness to spend time with her mom even if it is a slumber party at her old hospital...thanks for a grrreeeeeeeeat share...and you keep going strong Claire. You are the most amazing lil girl ever! You are the definition of a MIRACLE as is your family!
I love and miss u all
Your NONA
Claire & Family,
My wife Betty & I continue to pray for you everyday. We ask God to heal you and give you strength and perseverance. We ask Him to give your folks wisdom and confidence in your treatment. You were blessed to make the Disney show with your friends. I bet it was exciting and great fun. What a treat. I am sure God had a hand in that happening. We love your pictures and especially your big smiles. We also pray for all who care for you that their skills will be heightened and sure. We know their efforts are rewarded by your smiles and hugs. Have a great visit with Grammie. God Bless you all and keep the faith. Love Ralph & Betty.
Doesn't surprise us at all that Claire was able to attend the show... she is truly amazing!! You all are incredible!
Love to you all,
Prisco, Rick, Lauren and Caroline
(Baxter, too)
A little Disney Princess fairy dust seems to go a long way....
Thank you for the update. I continue to marvel at the whole Miller family strength.
She's just remarkable!
Denise Boroughs-Fitch
We are so glad Claire got to see Disney Princesses on Ice. A morale booster like that does a lot to help recovery, I am convinced. I hope the next several weeks go smoothly and Claire is back to her rambunctious self when it is finally over. Loves and hugs,
Lindi, Em and Dorian XXX00000
Yay! So happy Claire got to attend such a royal event! We continue to pray for Claire each and every day. We hope these next three weeks don't become too difficult. It is just inevitable that Claire's winning spirit will shine through. Wishing you each the very best!
All our love,
Billy, Tracy, Kelsey & Wyatt
We know Claire is special and miracles do happen. We believe. GO CLAIRE!
The McLaughlins
Hi Claire ,
We miss you at school, but it's good to hear you've been having some fun. I'm sure you'll have lots of stories to tell when you come back. We'll be thinking of you as you work through the next three weeks. Love from Mrs. D. and everyone at CPP
Dear MIller Family,
Your strength and resolve continues to inspire us all. Claire's determination and love for anything Disney wasn't going to keep her from the event as she proved true. I know how much she wants to go to Disneyland. I pray the next three weeks will be tolerable and hopefully, she will feel well enough to experience her wish...go to the "real" Disneyland !!
God's blessings upon your family awe and amaze each of us, knowing His love for you all is the cornerstone of each miracle.
We believe in miracles!
Love and prayers to you all, Mrs. McCarthy and the CPP staff.
We miss your smiling face, Claire:)
Glad to hear that Claire got to see her show!! All the best, she's in my prayers
Robin, ontario Canada
Claire is the real Princess in all this and we're rooting for her every step of the way. I'm so happy her Grammie Denise is there with her. She is such a special Grammie. Love to you all...Patty and all the Warlicks
I am so glad Claire and the other princess'es hade a sworiee. I am also glad Grmmie Denise is there too. xo Nikki Hannumn and the the family
Just returned from Calif to see Little Claire's update. Missed Grammy Denise in Salem so hope these next few weeks go well. So glad Claire could go to her Disney outing. Everybody should get to be a princess on ice!!! Our love, Ron and Sue
I'm sure more Disney "magic" is around the corner for beautiful Claire. Stay strong little one and God Bless you.
Love and prayers,
Peggie
Ahhhh....yes...and you should believe in miracles...for Claire is one of the best miracles ever....we'll just keep praying for our little Miller princess...thank you again for sharing her with us.
We continue to pray for sweet little Claire, and your strength to endure.
Love
Elaine & Mark
Thank you for the pictures. We all enjoyed seeing all the kids in their glory. My girls loved the bath picture the best. We are amazed by Claire's attitude and strength and the your family's ability to enjoy the small moments that mean everything to your kids. I hope you enjoyed the show and that Reese enjoyed her birthday party. Ryan you must be the most amazing big brother. Stay strong...we are praying for all of you!
Amy,Norm, Olivia, Ava and Luke Nhaisi
We were so happy to hear that Claire made the Arco show! I read this post from a hotel at, of all places, DISNEYLAND!! Andrew and I just got back yesterday and I hope Claire, Ryan and Reese as a family can visit in the future...it is a magical place! We will continue our prayers for your entire family and the care team for Claire... Love, Melanie and Andrew
I check this site daily but rarely post a thought. I just have a strong feeling at this moment. Couldnt tell you why, but I feel a energy that makes me leave a message. Claire WILL overcome and be given more time. She will get through this treatment and have opportunity to recover and experience more LIFE. That much I know.
Just thinking of you, sending LOVE and positive energy and hope all is well.
Love,
Lindi, Em and Dorian
XXXX0000
We hope Claire's treatment is going well. God Bless!
Hang in there Claire, you can do it!I believe in you.
Luv, Ms.Shasta
Claire is such a fighter! I am praying that she continues to kick cancer's booty!!!
Thinking a lot about Claire and the Miller family and hoping the treatment is going in a positive direction.
You are all loved!!
I believed and will always believe in Claire! Thinking and praying for you all, xo Nikki Hannum
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