October 7th
Claire will be admitted on Monday morning to Sutter Hospital. She will undergo surgery to replace the Broviac lines in her chest which were removed 2 weeks ago. The lines were a source of infection. She has enjoyed life without her tubes and was able to take a shower for the first time in over a year ( a very special moment for her). She will then begin round #5 of maintenance chemo. We continue to struggle with the chemo but we have agreed to go one round at a time as we progress towards the scheduled nine rounds. Shannon and I will be heading to Oakland Childrens Hospital on Friday to meet with an MD. who is very well known in the Childrens Oncology group and has done a tremendous amount of research on pediatric brain cancer. I have communicated with him via email and he has some thoughts that we want to discuss in person with him and are having him review Claire's case file. Somedays are harder than others and Shannon and I continue to hope the postive progress continues. We are constantly analyzing Claire's actions and behavior and sometimes it is overwhelming. You seem to live in a state of constant worry and wondering.
Please keep up the prayer and thought. We feel the support and it has carried us to points some thought were not possible. Thank you.
posted by Miller Family @ 9:43 PM
20 Comments:
Dear Chris and Shannon. You are all in my prayers, Hopes and thoughts each and every day. I love you all and expect miracles each and every day. I send you all positive thoughts and the strength and energy to get through this. I will be waiting for GOOD NEWS. Believe in good news for Claire. Love Joy
Shannon and Chris.....I can't express how much I admire your strength, and Claire WOW she is amazing! She has and will tear through every obstacle!!! Thank you for the continuous updates! I am soooo happy to hear about her shower experience :)
Nona
Dear Chris & Shannon,
Continuing to think about your family You are admired for the strength you possess and the love your family shares. Every child should know such love and support and Clair is so lucky to for such parents. You are in our thoughts and prayers every day. You are all amazing!
Clair, I'm sure you enjoyed that shower... You are Super Clair!
Love Walters Family
Thank you for the update. We love you all so much and pray for Claire constantly.
You are in our hearts as always,
Prisco
Our daughter was treated at UCDMC for 12 months by Jonathan Ducore, MD (Dept. Chair for Pediatric Oncology) for a Medulloblastoma Brain Tumor at the age of three. She was treated with chemo and radiation and has been cancer free for 9 years and just celebrated her thirteenth birthday! There is hope for a very healthy future and Dr. Ducore might be yet another good source of information. I know that UCDMC takes part in many clinical trials and shares research as well. We have been where you are and understand all the difficult decisions you are having to make. We will continue to keep you in our prayers.
Lance Matheson and family.
Good luck with your appointment in Oakland. Prayers for you and your family always!!! Positive thoughts too!!
The Kiniris family
I feel incredibly blessed to know your family intimately through your wonderful Auntie Erin. I received my own individual Claire update on Friday night and I just want you to know that there is not a day that goes by that I don't pray for strength and recovery for you and your family. You have indured so much, but you continue to amaze all of us. You stay strong today and every day and you will get through this and so will your incredible family. Love, Kelly Majure
Our thoughts and prayers are with you. Called your Grammy this a.m. but know that she is probably with you. We hope the procedure goes well and the chemo makes a big difference for your little sweetheart. Our love, Ron and Sue in Salem
Andrew will be very excited to hear Claire took a shower....one of his favorite things to do too! Every night Andrew and I say our prayers and continue to keep Claire (and you) at the top of our list. We will continue to lift you in prayer and ask for strength and healing. Keep up the fight against this ugly cancer!
Melanie and Andrew
Hi Miller family,
Thanks for the playdough. We can hardly wait for you to come back to school to use it Claire! We've been thinking about you and praying for you everyday. Remember life is made of moments so do your best to enjoy every one.
Love Mrs. D.
Hi Miller family,
Thanks for the playdough. We can hardly wait for you to come back to school to use it Claire! We've been thinking about you and praying for you everyday. Remember life is made of moments so do your best to enjoy every one.
Love Mrs. D.
We continue to pray and believe in Claire every single day. We hope her surgery went well today. I pray your meeting in Oakland goes well. We look forward to all of the updates we can get.
We hope you feel our e-hugs coming through the computer channels!!!
Love,
Billy, Tracy, Kelsey & Wyatt.
Thinking of you often. I just wanted you all to know that.
Bruce Wilbur
The worry can be overwhelming! Thank God for his promise:
"Come to me, all you who are weary and burdened, and I will give you rest." Matthew 11:28
God is working miracles in Claire. I'm praying for all of you - for strength, for comfort, for wisdom and for healing.
We are thinking of you and wishing you strength,love, and luck as you head to Oakland. You are the most gracious, honest, and grounded family I have ever known, and those qualities will lead you through this next phase. Your intentions for Claire are so clear and you seem to never lose sight of what is important and that is difficult when faced with so many challenges, worries, and fears. You are truely remarkable people so it comes as no suprise that Claire (and all your kids) have inherited your strength.
We are thinking of you and will be awaiting the good news. Our hearts are filled with hope!
Best Wishes
Amy Nhaisi and Family
We will keep Claire in our daily thoughts and prayers as she is always. May there be some sense of inner peace when times seem so overwhelming. We love you all and are here if you need anything! Love your Cousin Phyllis & Shaun :)
We have been out of town for a week and just got back, so I wasn't checking online. We continue to pray for the whole family and send positive energy your way.
Love, Lindi, Em and Dorian
We have added Claire to our "prayer chain" at church. My nephews have asked their Sunday School class to say a prayer for a girl named Claire in N. California who is fighting cancer. I always believe the prayers of children are responded to with special love.
Prayers for all your family.
Hoping that your meeting went well in Oakland. Always believing and keeping you in our thoughts!
Your continued strength and attitude is not only an inspirition to Claire but to all of the people who know and love you and your extended family. Each day is a miracle and Claire is at the top of the list of heros in our book. We continue with our prayers and thoughts of all of you during this football season. Go Ducks!! Love, The Warlicks
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