Claire was "sprung" from the hospital. She responded well to treatment and the hope is that the infection does not return. If it does that suggest the infection is somewhere in her shunt line. They did " tap" the line and found the samples clear but the infection could be anywhere along the pathway so the result is not necessarily a firm clean bill of health.

She is doing very well and accompanied me to work on Tuesday for a few hours. Very special.

We now will await the August 12th MRI with hope of continued success.


Thanks.

Claire was admitted to the hospital on Saturday evening. She awoke on Saturday not feeling so great, lethargic, and complaining of stomach pain. A low grade fever followed and she was admitted at 6pm. She underwent intitial tests to rule out "tumor" progression and/or shunt malfunction. Those test's revealed no visible problems. This morning she underwent an abdominal CAT scan and ultrasound with the possibility of absyss or appendicitis. No conclusive evidence was seen. At this point she is awaiting a visit from her neuro-surgeon to discuss potential shunt infection somewhere along it's pathway from brain to stomach. We are somewhat perplexed with what the diagnosis is. We will update when we determine her diagnosis and treatment.

"If it isnt one thing, it's another" seems to be our motto!

A quick note for the anxious Claire supporter's. Claire is experiencing life with the heart and spirit that defines her (also with a touch of frustration and classic Claire moments). We still have day's where we find ourselves concerned with prognosis but accept this will part of our lives for as long as Claire beats the odds. Claire is scheduled for another MRI on August 12th and again the pictures will tell the story of her disease. We will believe that the enhancing area will continue to "melt" away or be stable.

Thanks for your continued interest and support. It continues to have such a large impact on our family and has obviously provided Claire many needed prayers and positive thoughts.

Do not stop. Stay with Claire and continue her MIRACLE!!