Hoping For Great Pictures on Monday!

Aunt Erin and Claire

Hello All,

We are again filled with hope and anxiety as we prepare for Monday's MRI. Claire continues to amaze but there are times we question symptoms and behavior. "Could that be a sign of tumor growth" creeps into our minds now and again. We are fortunate to still be asking these questions and make every effort to enjoy each and every day. This MRI feels particularly important in answering some concerns. If the disease is stable it would provide some comfort in understanding that Claire can present with symptoms that mimic tumor growth but in fact are not representative of disease progression (This MRI will be the 2nd 90 day period).

Please think of Claire on Monday. Your support has brought us this far and absolutely has impacted her journey.

I have posted a few pictures of Claire and Shannon will be posting some long awaited Disney photos soon ( Plus many more I am sure).

Thanks to all that have kept Claire in thoughts and prayers.

WE KNOW SHE CAN. WE BELIEVE.

Claire, Audrey, and Reese

Happy New Year

Sorry for the lack of updated info. We had a busy Holiday season between Sacramento and Oregon. Claire is doing well. She has experienced some seizure activity but it appears to be under control with some adjustment to medication. She will undergo another MRI on February 2nd and we will provide a more informative update soon after.